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TracyCare: Focusing on Care for a Sick Child, Not Worrying About Insurance
Ed. Note: This was originally published on Healthcare.gov Tracy Wirtanen-DeBenedet’s story began four years ago when her 9-year-old son Sami was diagnosed with neurofibromatosis, a genetic disorder that causes tumors to grow throughout the nervous system, including the brain.  There is no cure for the disorder, but the tumors generally can be managed with surgery, chemotherapy and constant attention to head off severely debilitating or life-threatening complications. Sami didn’t grow for a year because of complications. “He’s a kid, he’s just a normal kid, happy-go-lucky child, but he’s a kid that gets MRIs every three to six months,” she says, sharing her family’s story. read more
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